This blog was created to chronicle the life of Jacob Ryan Fahmer - a beautiful gift of God born with a genetic disorder known as Trisomy 18.
January 14, 2008 - May 31, 2008
Tuesday, May 13, 2008
Hi. It's Karen. Jacob has headed in a new direction. He spiked a fever of 102.1 (which is high for him since his temp is usually about 96 or 97). His respiratory rate and heart rate increased which gave him less frequent apnea spells but we fear him tiring out....he was breathing with lots of effort. We wiped him down with a wash cloth (meds are not an option and he should not be submerged to avoid chilling him) and this dropped his temp to 98.6 which is great. Pray he maintains that. He is now resting comfortably, his heart rate is normal for him and his apnea spells are still happening but he is alert to snap himself out of it. His belly is distended which leads me to believe his higher calorie formula could be giving him tummy trouble. He is currently on plain breastmilk again and his next feed we will give him one dose of pedialyte and then back to breastmilk to avoid bloating like last weeks episode. So, that is where we are at. THANK YOU for all your prayers and support. Please pray for wisdom and guidance and a strong, fighting baby boy.
"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth, your eyes saw my unformed body. All the days ordained for me were written in your book before one of them came to be."