This blog was created to chronicle the life of Jacob Ryan Fahmer - a beautiful gift of God born with a genetic disorder known as Trisomy 18.
January 14, 2008 - May 31, 2008
Thursday, May 29, 2008
Day 137! ~ I'm Pooffy Again!
So my face is fat again...and my butt cheeks are fat.....and just my right hand is fat.....not as bad as last time but it's a poofy start. I was sleeping all morning laying on my right side, not moving much and when Mom went to change my diaper, she rolled me over and my right eye was completely swollen shut!....she was kind of startled and called Nurse Ann Marie and Doc's nurse Marleen. They were both kind of baffled and couldn't tie it to anything....but it is so hard with my condition to know what is going on in the cells of my body and organs and stuff. Nurse Ann Marie said I look fine other than the slight poofiness and even after Mom rolled me over, the fluid must have dispersed throughout the rest of the body because my eye is ok now.....but the fluid can just move throughout and make other areas swollen. Ann Marie listened to my lungs which sounded clear. My urine has been this odd shade of orange for over a week now and no one can figure out why. I am a tough case. All my medical friends give their best and I thank them for that.....I like to give them a challenge. So while I was blimping up , Mom was getting her flower garden together, Dad and I were baking more "Blessed Friends of Jacob Bread," and Joshua & Jonathan where playing with the Millennium Falcon and watching Stewart Little....how those two things go together, we will never know....all us Fahmer Boys are mysterious! So, I am just going to take it easy. Mom is going to rotate me like a rotisserie chicken so I don't blimp up on one side again.....what a great mind image that is! Pray for drainage, wisdom for Mom and Dad, creative thinking for my doctors (since I am not a standard case), and just strength for us all. Thanks guys. Love you lots. P.S.~ Hi fan Leah in Seattle....I hope you are not "Sleepless in Seattle" tonight! I will update as often as I can. Mom & Dad's internet is working now but who knows if that will remain. I will have someone update from somewhere if we learn anything new. Sorry for the delay. Everyone remember: No news is good news. If something is terribly wrong, it will be posted so please do not fear if you have no word of anything.
"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth, your eyes saw my unformed body. All the days ordained for me were written in your book before one of them came to be."