Last night, I slept pretty good only waking once to be fed. Joshua likes to wake me up in the morning with big wet kisses....he loves me.....and man do I love him. Mom isn't too fond of Joshua waking us up but it is kind of hard for him since he is an early riser and we are sleeping in the living room....what else is a big 5 year old kid to do when he wakes up and sees two sound sleeping playmates???...wake 'em up! Mom just wants to sleep but Joshua helps us start our day early. It isn't so bad for me to get up that early since I sleep all day but Mom on the other hand doesn't sleep much so I guess I understand.
Well I spent most of my 80th day sleeping while traveling and at the hospital....for my test......we went to my ultrasound appointment. We got there 30 minutes early which apparently was too early....our appointment was at noon but we didn't get started until 1! Now that wouldn't have been a big deal regularly BUT since they had to see my insides, I couldn't eat for 4 hours prior....but seeing they were an hour behind, that meant I had to wait over 5 hours to get that goodness in me! I was NOT happy! My tummy was roaring. But then Miss Catherine measured my gallbladder and then let me eat for the rest of the test.....which took some time....it's not easy finding all my little parts especially since they are not necessarily where you would find them in a non-trisomy 18 baby. Miss Catherine was amazed at my tubing that connects my tummy to my small intestines.....pylaral-thing-a-ma-bobber (that is the official name :) .....she said the wall was sooooo thick she couldn't believe my food traveled down....she kept asking if I spit up all the time....I don't and she wouldn't have believed Mom and Dad if she hadn't seen the food I ate travel through with her own eyes. I am made soo different and complex that it is only by the true work of God that I work and am alive today.....You think about that and think about how complex and perfectly made we are....sure we all have our differences, yet we are here functioning and it is all to His glory.
We have yet to get the test results. Miss Catherine couldn't say for sure, but there were not many signs of problems she could SEE. This could mean that my problem is more on a cellular level that we cannot see on an ultrasound....and with me being T18, there is a good chance this is the case. BUT we will see what my wonderful pediatrician says tomorrow.
My butt is still raw because I cannot stop pooping....I'm not sure what this is all about (liver issues?)....but every time I get a new diaper, I make my mark. So, regardless of all the protectants and healing meds Mom slaps on there (thanks to all of you for your special magic butt ointment recipes), it just does not have time to heal in between. We think it is making progress but it still hurts me and I let Mom know.
I went and slept the whole rest of the day waking for a bit here and there. I am pretty sure we ended up at Gramma & Grampa's house.....I kind of remember waking for a quick moment and seeing Gramma and then later I gazed at Grampa.....but other than that, I was in dream world. Now I'm home under my fabulous zebra print waiting for sleep to come again after I finish updating you all.....so it's off to bed for me and Mommy.
Hope to let you all know the results tomorrow.....keep praying.....it's all in God's hands.....His grace is sufficient.
1 week ago