Q: Will you be continuing the blog?
A: We are not sure to what measure yet. So we don’t know. Definitely not daily….that was A LOT of work! You were all worth it though. It just is too much to keep up with. So, we have yet to decide what we are doing. We have a computer program that takes the blog and puts it into a hardcover book so we will have that as a memory book so we’ll see what happens.
Q: My first son had a choroid plexus cyst (discovered at my 20wk ultrasound). It was monitored for 7 weeks thereafter and had diminished completely by that point. Did Jacob have one? We were very concerned the cp cyst could mean our baby had Trisomy 18 as they are associated. I'm just curious.
A: Yes. On October 3rd, I was 6 months along, we found out about Jacob’s heart as well as 2 choroid plexus cysts. We were told these cysts are common and could disappear yet could lead to other disorders if they stick around or be signs of other disorders. During this ultrasound, other Trisomy features were not detected due to his mild features…..his hands moved very well in the womb so this feature was never picked up. The cysts shrunk with each ultrasound and disappeared as expected from a normal baby. Other than Jacob’s heart, there were no detectable features that led us to believe he was a baby with Trisomy 18. Our doctors were amazing and had their eyes on everything….we were highly monitored and we were “strongly advised” to get an amniocentesis due to the fact that we were going through the process of setting up open heart surgery for him 7 days after birth and they were concerned about us being crushed if he had a disorder and then they couldn’t do the surgery….being told for 3 months they can fix your baby and then them saying there is nothing they can do can take a toll on people….but it didn’t matter to us at what time we found out if our baby had a terminal illness….we would have been (and were) crushed either way with a positive terminal diagnosis. As stated before, we declined the amnio putting his safety before our and our doctor’s curiosity….they would not have been able to do anything. I know this answer contains more than what was asked but I got going and just kept going….sorry!
1 week ago