Tuesday, February 19, 2008

Day 37

Today was a nice lazy day hanging out with Daddy and Joshua. Yesterday I had fun with Joshua building a train in the basement. Today we played Transformers for the better part of the morning. I slept a little. Then me and Daddy slept on the couch while Joshua watched Transformers on TV. Jonathan was at Gramma and Grampa's most of the day, so the house was a little quieter and thus easier to fall asleep.... but I did discover one thing... my THUMB! Check out the pics of me sucking on my thumb! Who needs a pacifier anymore!??!
Aunt Nancy came over to visit today and somehow while she was holding me I managed to pee on her and the couch! They thought they had me covered up during my diaper change but I showed them who is boss!

Gramma and Grampa brought Jonathan home and brought us dinner. I slept through most of it. I did a lot of sleeping today... Mommy's not going to like that tonight!

Eating is going well for me. Mommy and Daddy just keep pumping me full of food and I'm loving every minute of it. No doctors appointment tomorrow so we'll have to get the nurse to weigh me later this week so I can give all you "weight watchers" an update!

Don't you love my cute little outfit!



Monday, February 18, 2008

Day 36 - My 5 Week Birthday!

Buscia came to visit me today and she brought Grampa's cousin Elaine with her. We had a nice visit and they stayed for lunch so that they could take turns holding me while the other one was eating! Neither of them wanted to put me down or give me up!

Ms. Kelly came out and dropped off dinner for us... including birthday cookies! She couldn't stay and hang out though so no picture... sorry!

My nurse came out to check on me today and she said everything sounded good. I managed to gross out a nurse... now that's impressive. Mommy pushed on my hernia to show her the cool squishing sound that it makes and I think she almost threw up! She had never heard anything like that before... it's really cool.

Mommy and Daddy decided to spread me out with all of the cards and letters that we had received... check out this picture...see if you can find the one that you sent me....

I also got a picture of me in my 5 week outfit. I got my dukes up ready to go since my great papa says I'm going to be a boxer. I guess I'd have to be super mosquito weight....
Gramma and Grampa came out to celebrate my 5 week birthday! Of course they sang to me again... this time with a candle in a plate of cookies! Jonathan went home with them to spend the night at Gramma and Grampa's house.... maybe someday I'll get old enough to do that too!





Sunday, February 17, 2008

Day 35!


Today was my second day in church. I did a little better than last week listening to the sermon, but I noticed that I might be a bit of a distraction for others around me. No, it's not that I make noise or squirm around or make a scene like some children... but some of the ladies in our row just can't stop looking at me. I think I might be a stumblingblock for them because I take their attention off of the message because they watch my every move! Maybe next week I'll just stay outside so as not to cause them to be distracted! :)

After church Ms. Angela and her son Joe came and brought us a TON of groceries. There were so many she had to bring them in a laundry basket! She also had Joe pick out some really cool toys for my brothers which they loved! It was nice of them to stay and visit with me and my family!

Aunt Josie came over today by herself.... I don't think she wanted to share me with uncle Tony or Matt-man! She didn't even want to share me with Daddy or Joshua and Jonathan... she snuck over while they were all taking a nap! She brought Mommy a pretty Trisomy 18 bracelet that her friend Rosemary bought for a gift. It's really pretty and it has my birth stones on it!

We spent the evening on the couch as a family reading books... first Mommy read and then Daddy read. Joshua and Jonathan like it when Mommy and Daddy make funny voices! I just like to hear my brothers laugh... it makes me smile on the inside! Me and Mommy fell asleep on the couch while the other boys were getting ready for bed. Mommy was up early with me, so Daddy sent her to bed so that Daddy could teach me one of the more important things about being a boy... we went downstairs and watched TV together! No, it wasn't sports... but give it time I'm sure hockey or basketball playoffs won't be far off!

Saturday, February 16, 2008

Day 34!

First I want to encourage you to watch the "We Live" video on the post below this one! This is what happens when Daddy gets bored because I'm not home to keep him busy! I think he does great work! (Really Jen Santora and Jen Allis did most of the hard work... he just put it to music and made it fun)

So since Jonathan made us do the emergency evac last night I hung out with Mommy at Gramma and Grampa's all morning until we knew it was safe to return home. Daddy and Joshua apparently had cleansed the house of all sickness and Jonathan was feeling better so we headed home. Good thing... my numbers didn't like sleeping at Gramma and Grampa's!

It sure was nice to see Daddy again! As soon as I came home he kissed on me and told me how much I'd grown since last night.... he's so silly. My brothers were really happy to see me too.. especially Jonathan since he wasn't allowed to get close to me when he was sick and now that he was better he could come and love on me again!

Tonight we went to church for the Valentines Day Chocolate Feast Fundraiser for me and Children's Hospital Nicu. I'm including a shot of the spread above in case you missed it.... YOU REALLY MISSED IT! There was so much delicious yummy gooey goodness we didn't know what to do with it... literally! We had to send plates home with people! It was soo good to see all the different people who came out to see us... people from church, family from all over, friends, Peggy from my cardiologist's office, Jen Santora from First Light Photography, and of course the highlight of my night... some of my girlfriends from the hospital came to see me! I was especially delighted to see Ms. Blayre... Mommy was kind of upset with me because I had been sleeping all night long but as soon as I heard that Ms. Blayre was there I woke right up so that I could see her! Here's a shot of me and Mommy and my NICU girlfriends! I was kind of sad that Ms. Peggy and Ms. Amy couldn't make it but I know that they were thinking of me!
Mommy and Daddy were excited about the money that was raised tonight because they want to give back to the NICU that took such good care of me while I was there. Mommy especially liked it when the nurses took my pictures and surprized her with them the following morning so she wants to get them some photo equipment and materials to be able to do that for other babies and their mommies. It was a great way to show that I was being loved on even while Mommy and Daddy weren't by my bedside (which wasn't often!) So to all of you who came out tonight and gave of yourselves and your time: THANK YOU SO MUCH! (but don't blame me when you have a belly ache from all that sugar!)

We Live Video!


Friday, February 15, 2008

Just A Reminder..If You Can Make It ...Great!

Valentine Chocolate Splurge to Benefit Jacob Fahmer
This Saturday February 16, 2008 6:30 - 9 pm
Grace Baptist Church 2525 Eggert RoadTonawanda, NY 14150
A portion of the proceeds will benefit Children's Hospital Neonatal Intensive Care Unit

Hosted by friends of the Fahmer family

Anyone and everyone is welcome to attend, but if you know ahead of time that you and your family or friends are coming, please let us know. The contact information is below. We will be serving chocolate as well as many other kinds of desserts, coffee, teas, etc...If you would like to help in any way please contact Del and Chrissy Reid @ reid.chrissy@gmail.com

Day 33!


What a crazy day! My night was good. I spent a lot of it with Daddy on the floor ... but my numbers were great! We got up early because me, Mommy and Jonathan had an appointment we had to go to. We headed straight to the cardiologist's office from there... but since it was Friday and we were on the run, Mommy and Daddy decided to get Joshua and Jonathan a treat at Tim Hortons for the car ride... boy would they regret that in a couple of hours!
Good news is that my cardiologist looked me over and also did an echo of my heart and he thinks that my "ductus" is still open but even after it closes that my numbers shouldn't drop too much. He doesn't think that I'll need lasics for draining my lungs and that there is pretty good flow through my mangled heart. I guess that's good news.... hate to see the bad news huh?
We stopped at Ms. Jenn's house from First Light Photography to pick up some pics of me and the fam. They are BEAUTIFUL! She also made us a pretty cool little DVD with a slideshow of my pictures on it. She's great!
On the way home, Jonathan kept saying that he didn't feel good ... and he wasn't lying! As soon as we got in the house he threw up all of his vanilla frosted pink sprinkle donut all over the living room rug! Boy did it smell! It made me want to throw up too... but it just went up my tube! We were hoping that it was just a little too much sugar from Valentines day and donuts for breakfast, but no luck... he threw up two more times in the afternoon and once right before he went to bed. He must have some kind of bug.
So this screwed up our weekend all together! Aunt Josie couldn't come visit today and Derrick and Nicole were supposed to come with their daugher from Binghamton tomorow and now they can't! Mommy and Daddy were kind of worried about me getting sick so we pulled an emergency evac out of the house tonight... Joshua and Mommy helped pack me up while Daddy took care of pukey-Jonathan and Grampa came and picked me and Mommy up to take to his house for the night. Daddy and Joshua are going to try and air out the sickness and get Jonathan better while we stay at Gramma and Grampa's. So I gotta go explore a new house so no more time to blog tonight... hope to see you at the Valentines Fundraiser tomorrow!

Thursday, February 14, 2008

Day 32 - My One Month Birthday!


Happy Valentines Day Everybody! I hope you had a good one... mine was GREAT! I started my day by sharing valentines with my Mommy, Daddy and brothers. Here's a picture of some of my valentines... I am so loved. I got valentines from my family, from Gramma and Grampa, from my homeschool friends, and even from friends in Delaware... wow.

Later on Mommy's friend Stephanie came over with her two sons. They brought us dinner and valentines... but really I think they just used that as an excuse to come see me! Can you blame em?

Gramma and Grampa came over for a Valentines Day / 1 Month Birthday Lunch. We ate pizza and chicken wings ... you should have seen my brother Jonathan's face! It was hilarious! He had barbecue chicken wing sauce all over his entire body! Then everybody sang Happy Birthday to me and passed me around so they could all kiss on me a little bit.

After the boys nap we all headed over to see my great Nana and Papa for the first time! They haven't been able to come out and see me and so I was very excited to go see them! They couldn't believe how little I was and they just kept smiling at me and saying how beautiful I was. Great Papa especially liked how little my fingers were... but he said he thinks that I'm going to be a boxer since I always keep my fingers clenched together so tight! One little cry out of me though and he was afraid to keep holding me... passed me off to my Mommy! Maybe I'm losing my touch though... no tears from anybody tonight! Great Nana made dinner for us of course... even though we told her not to. She had two chickens in the oven... both of which weighed more than me! Almost twice my weight! That great Nana... always making more food than anyone could possibly eat!

I took a little nap on the ride home and until the boys went down to bed. After I woke up Mommy gave me a bath and then we hung out on the floor together while I blogged. We spend a lot of time on the floor lately. Last night Mommy, Daddy and I all fell asleep on the living room floor. Daddy woke up sometime and snuck off to bed leaving me and Mommy there for the rest of the night. We were up to eat or course but I'll sleep just about anywhere other than my bed! (as long as Mommy or Daddy are right there with me!)

There's also some new videos for you to check out along the sidebar! Enjoy!

Wednesday, February 13, 2008

Day 31!

Wow.... we're about to break the 15,000 visitors mark since January 29th. Thanks for all the interest in my life... it means a lot to me and my family! Well I spent most of the night on the couch with Mommy or Daddy last night... I have them wrapped around my very little finger. Even when I pull my tube out like I did last night, Mommy just comes along and puts it back in for me! Late last night and early this morning Mommy and Daddy did a photo shoot with me.... they're so silly... they make me do the most ridiculous things. Check out some of the goofy pics below.

I went to see my doctor again today. Bad news: I'm down to 3 pounds 13 ounces. There goes the 4 pound barrier again... but my doctor has a plan to bust me right through it this time. We're going to increase my food and beef me up so I can be a linebacker... or at least be more than 4 pounds! More bad news: my doctor has the nerve to take a personal vacation next week so I can't go back and see him for two weeks.... so we'll just have to get the visiting nurse to weigh me so you all can be updated. I like her scale better anyways...it says I'm 4 pounds 1 ounce!

I did two things for the first time today that every little kid should do: 1. I visited the mall (my brothers were there with Grampa while I was at the docs) and 2. I rode my first merry-go-round! It was awesome! Actually, I think I slept through most of it. Can you believe that no one brought a camera? Geesh.

Mommy's cousin Jill came over to visit today with her little daughter Emily. Since she's a doctor I figured I'd get a chance to do the whole, "Look-At-Me-I'm-Not-Breathing" thing but since I was wireless it wouldn't have been as dramatic as in the past so I just slept a lot.

After dinner our whole family played a game where we had to throw little bean bags at a tic tac toe board... I wasn't very good at it.... but it sure was fun and everytime we played it made Mommy laugh until her belly hurt!

After my brothers were in bed I helped Mommy and Daddy make valentines for them for Valentines Day tomorrow (which also happens to be my 1 month birthday!)


Here's to breaking the odds....

Tuesday, February 12, 2008

Day 30!


((My brother Joshua took this picture of me... not bad for a 5 year old, huh?)) What a night! I'm spoiled... I decided that I didn't want to sleep alone in my bed so I fussed until Daddy gave in and took me to the couch with him (which only took about 2 seconds)! We slept on the couch until early morning but then we had to get all packed up in that nasty car seat (have I mentioned that I hate the car seat?) and head off to the cardiologist office again. This time not only did I see the cardiologist, but my pediatrician, my home nurse and the lady from CompassionNet were there! They all just wanted to get together and sit around a big table and talk about me. Can you blame them? I am the hottest blog writer on the internet after all.

I continue to freak people out. This time it was my oldest brother. Mommy and Daddy left me alone with Joshua for a few minutes while they got ready to leave and somehow we managed to get my feeding tube out and spew my stomach contents "all over the couch," (according to Joshua). Joshua was pretty upset because he thought he did it, but honestly, I think I hooked it with my finger and jogged it out myself. I hate that thing.

The best part of that whole experience was that Mommy decided to leave me wireless for a better portion of the morning. No pulse/ox connection and no feeding tube! I could go out into the world like everyother 4 pound baby... or maybe not....anyways... once we came home mommy let me suck on a bottle nipple that actually had something in it ... it wasn't that dumb pacifier... I finally found the GOODNESS! I drank about 17 cc's without throwing up!

Gramma watched Joshua and Jonathan while we were gone and hung around until Buscia and Tom came to visit. They braved the nasty weather to come see me and brought Costanzo rolls for lunch! MMMmmmm!

Ms. Erin came and dropped off dinner for the family. They all really enjoyed it. Joshua especially enjoyed the yummy cupcakes.


My cardiologist is not a fan of my pulse/ox machine and he told Mommy and Daddy to "screw the pulse/ox monitor" ...whatever that means. So whatever it means, Mommy has left me unplugged all day! No more annoying beeping everytime I stop to pass gas! However, I will miss watching Daddy trip over it everytime he tries to move me around the house. Mommy says I'll still have to be on it throughout the night and from time to time to check on my progress but this way people can look at me instead of some silly machine.

Monday, February 11, 2008

Day 29 - that's four weeks ladies and gentleman!





First I want to bring your attention to some new video's along the sidebar...go check em out! Second, Gramma's friends were complaining that her picture is never on my blog... so she got all jazzed up for my party tonight and did her makeup so that I would put her picture up.... so here it is right at the top.... :) (please don't send me emails... I know it's a picture of the brownies... I did it just to make her mad!) :)


Mommy spent all last night with me on the couch because I decided to have my oxygen levels drop to the high 50's/low 60's all night long. Mommy also didn't like that my heartrate was dropping low either. Daddy didn't seem to mind though... Mommy never went and got him to trade off with her so he got a whole 6 hours of rest! My stats stunk all morning except when Daddy, Joshua and Jonathan took me downstairs to watch my first Star Wars movie! I really liked it I guess..... or maybe just that Daddy was holding and rocking me the whole 2 hours!



I had to start behaving myself when my nurse Anne Marie came over or I would probably get in trouble. So I made sure that all my stats looked absolutely perfect right before she came and managed to keep them for the whole hour that she was here. I also made sure that I pooped since Mommy and Daddy were getting concerned about that too since it had been a couple of days. Anne Marie talked to Mommy and Daddy about how to adjust my food so that I should be able to digest better. Mommy and Daddy also got lots of people asking about my previous post from the other day about the $250/can Human Milk Fortifier. I think that some of you were ready to go and start a protest at the factory of the company who makes it.... and I don't even need it yet. Thanks for your concern I'll let you know when to get the picket signs! :) Of course, as soon as my nurse was out the door I let my stats drop again. Mommy and Daddy call me a "little stinker!"
Aunt Nancy came to visit and since she's a doctor I decided to give her a run for her money and show her what little boys look like when they stop getting oxygen. I figured I should test out her life saving skills. Don't worry people... she passed.... I just needed my brain woken up a little bit. Gramma and Grampa came out to sing Happy 4 Week Birthday to me so for the rest of the evening I behaved myself... for the most part!

Here's one more picture of Gramma so that her friends don't get mad and riot or boycott the blog! Gramma loves giraffes and has always bought each of the Fahmer boys a stuffed giraffe when they were babies. Well I guess she was in the card store and saw a Mamma Giraffe bath float with 3 little Baby Giraffe's and just had to buy it for us. Here I am holding my Baby Giraffe!

Choose Life


It seems like no matter where we go or who we run into everyone is so amazed at what we’re doing for our son Jacob. Whether it’s the doctors or the nurses or the social worker or the person down the street… everyone has continually said how astonished that they are that we have him home and how we’re loving him and caring for him. This is somewhat strange to us… he’s our son… how else would we treat him?
Strange until you realize the sad state of the world we live in today. I spoke with a neonatologist who said that more often than not children with a condition like Jacob’s are often given up for adoption or left in the hospital until they die. That is of course, she said, if they even make it that far since many women don’t “choose to carry them to term.” How’s that for a politically correct saying? Karen read a statistic this week that said that only 20-40% of women who know their child has a genetic flaw choose to give birth to that child. In other words, 60-80% of women choose to kill their child rather than deal with a child who may be inconvenient, painful, or less than “perfect.” How sad is that? For those of you who have traveled this road with us to this point, and have seen how Jacob’s life has impacted ours, yours and other’s lives, you know how incredibly sad that is. That means there were that many more people who could have been impacted by little lives like Jacob’s who missed out on the blessing that you yourselves have witnessed and been a part of.
I in no way want to use Jacob as a billboard or a tool for any one cause (other than the kingdom of God), but I can’t help but think how his one little life has so positively affected thousands of people’s lives and the same could be true for millions of others but they were never given the chance. They were “incompatible with life” or “incompatible with my life” so they were thrown away. Literally. If you think that abortion should be a legal practice I strongly urge you to see it, know it and still try to defend it. Go to http://www.abort73.com/ and see it for what it truly is. I warn you… this is a truthful depiction of what happens and contains many graphic facts and videos (don’t watch it with children around!) It will change you forever. I can’t imagine for one second choosing that over the incredibly blessed time that we’ve had with our beautiful little miracle. And yet day in and day out that is the suggested course of action by thousands of medical professionals in our country.
I see all the news about the coming election and I think… “what should we vote for?” A good economy? Better “health care?” Security? Shouldn’t LIFE be the driving force or our belief system? Job 12:10 says, “In his hand is the life of every creature and the breath of all mankind.” Isaiah 42:5 says, “This is what God the LORD says— He who created the heavens and stretched them out, who spread out the earth and all that comes out of it, who gives breath to its people, and life to those who walk on it.” Life is a gift from God and thus should be treasured and protected.
Who gets to make the decision as to who should live and who shouldn’t? What defect warrants death and which genetic disorder should be allowed to live? It reminds me of the story of Jesus and the woman caught in adultery in John 8. “The teachers of the law and the Pharisees brought in a woman caught in adultery. They made her stand before the group and said to Jesus, ‘Teacher, this woman was caught in the act of adultery. In the Law Moses commanded us to stone such women. Now what do you say?’ They were using this question as a trap, in order to have a basis for accusing him. But Jesus bent down and started to write on the ground with his finger. When they kept on questioning him, he straightened up and said to them, ‘If any one of you is without sin, let him be the first to throw a stone at her.’ Again he stooped down and wrote on the ground. At this, those who heard began to go away one at a time, the older ones first, until only Jesus was left, with the woman still standing there.”
They all had faults… they had all sinned (Romans 3:23 “For all have sinned and fall short of the glory of God”). So they all left her alone because they could not condemn her to death when they themselves had also committed sin. Don’t we all have some defect? Don’t some have bad skin or poor eyesight or bad coordination? Does that make the life God has given them worth any less? Is the person who lives 100 years worth more than the one who lives only 100 days? Does God have less of a purpose for Jacob than He does for others? I don’t think so. “Jesus straightened up and asked her, ‘Woman, where are they? Has no one condemned you?’ ‘No one, sir,’ she said. ‘Then neither do I condemn you,’ Jesus declared. ‘Go now and leave your life of sin.’” What a glorious day it will be when all of our children are given the same chance at new life.

But God demonstrates his own love for us in this: While we were still sinners, Christ died for us…The gift of God is eternal life through Jesus Christ our Lord” (Romans 5:8, 6:23).


" This day I call heaven and earth as witnesses against you that I have set before you life and death, blessings and curses. Now choose life, so that you and your children may live and that you may love the LORD your God, listen to his voice, and hold fast to him. For the LORD is your life, and he will give you many years in the land he swore to give to your fathers, Abraham, Isaac and Jacob" (Deuteronomy 30:19-20)

Sunday, February 10, 2008

28th Day!


Today was my first day in church! (outside of Mommy's belly of course!) I was strapped to the outside of Mommy's belly and, like a lot of big people, I slept through most of church. I woke up at then end of church so I could eat lunch... also not unlike many big people! But I did get to see a lot of people who have been praying for me and my family. So many people came up to see me and tell Mommy and Daddy they're still praying and to give me gifts! I like it there.

After church we went home and Gramma and Grampa were there making lunch... or burning it... it was the first time I was glad that I eat through a tube! :) Gramma's aunt Carole and cousin Amy came all the way from Rochester to see me... they got lost a little thanks to some guy named TomTom but they eventually made it and we had lots of fun together.

Ms. Heidi from mommy's homeschooling class came and brought us dinner with her daughter Maddy. It smelled so good... I can't wait until I get to that batch of milk! Mommy, Daddy, Gramma, Grampa, Joshua and Jonathan all ate it up and said it was delicious!

Pray for my brother Jonathan. He's been making a lot of noise at bedtime lately. He's not making very good choices and crying a lot. I think he misses me at night.

I really want to drink through my mouth. I keep telling Mommy and Daddy by making a sucking motion with my mouth but they just don't get it... they keep putting this thing in my mouth which doesn't have anything in it. I suck and I suck and I get nothing! I know there's some goodness somewhere!

Saturday, February 9, 2008

Day 27!

Dad actually got me to sleep a little last night and since my numbers were ok I think he even slept a little on the couch too! Ms. Juli came over to draw with my brothers this morning. Gramma came over too... but she didn't want to watch them color she just wanted to watch me! She told me that she was reading my blog last night at 1:30 when I was typing it!

Later on Ms. Kelly came over with her daughter Faith, her sister, her neice and her mommy. She brought all sorts of gifts for me and my brothers from the homeschooling group's valentine's day party! There were gifts for Mommy and Daddy too! The best one is a scrapbook filled with pictures of me and my family! Ms. Kelly and her family worked very hard on it and it is beautiful! It is something we will treasure forever! Thank you!
I slept a lot in the afternoon just so I can keep Daddy up tonight! We'll see though, Mommy gave me a bath right before my brother's bedtime and bath's make me sleepy for a long time. Mommy also gave me some gas medicine and I love it! It's like candy! I would suck up the whole bottle if I could!

Before bedtime, Ms. Amy and Mr. Jeff came over with their daughters Lauren, Emily and Alexa. They all took turns holding me (check the pics below!) and my brothers loved playing with Lauren and Emily. Daddy was happy too because they brought ice cream!

I'm having some difficulty digesting my food today. Mommy and Daddy keep pulling back lots of undigested food out of my tube. They've tried reducing the amount they give me each time but I'm still having some trouble. Please continue to pray that I can eat up all my food so I can keep growing. I forgot to tell you a major milestone yesterday! When the nurse came to see me yesterday she weighed me and I was 4 pounds 1 ounce! I BROKE THE 4 LB BARRIER! Woo hoo! Just gotta make sure that I keep eating so I don't fall below it again!

















Day 26!


  • Today was Aunt Teri day! Jonathan's been asking when she was going to come visit for the past week and finally today was the day! She took a day off of work just to come see me! I think I know why the boys like to see her... because she brings presents! We had a really nice visit with Aunt Teri because she was able to stay all day long!
Mommy talked to my doctor on the phone today - she was very impressed that a doctor called her! They're trying to figure out my food situation. Apparently Mommy wants to get the food that I had at the hospital (Human Milk Fortifier) but since it's only used in the hospital it costs like $250 a can instead of the normal $20 a can! We're going to see what we can do about that! Also he wanted to let us know that the hospital did some kind of test and he got the results back and it said that I might also have Cystic Fibrosis. Strange though... it showed up on one test and not on another. Mommy and Daddy had been tested with my brothers I think and never had any indication of problems. I'm just that special! For now, we're just not going to worry about it! The doctor said that as long as I'm pooping fine... and we all know that I am! ... we can wait on doing any kind of crazy tests! Phew!
Daddy talked to a friend at work today and he said that they raised a bunch of money for us at a bake sale. Maybe that will help get my food from the hospital! Thanks GEICO! Friendly little lizards...


Later on Mr. Steve came to visit and bring us dinner but he was too afraid to hold me so sorry.... no picture.


Mr. Rob and Ms. Tami came over with their boys tonight. Don't worry... Ms. Tami did not let Mr. Rob shake me up again! I've done enough puking on my own these last couple of days! Right now I'm just drifting off to sleep after having kept Mommy, and now Daddy, up for some time so I should probably go. I'll talk to you all tommorow!

Thursday, February 7, 2008

Day 25



I stayed up late last night with Daddy. We hung out until about 4AM and then I threw up for the first time so Daddy chickened out and went and woke Mommy up. I think the new food the doctor told Mommy to give me is making my tummy hurt because I not only learned to throw up today, but I practiced a lot too!

Mommy took my brothers to the YMCA while Daddy stayed home to meet with one of the CompassionNet ladies. I decided that I didn't like her interfering on my time alone with Daddy so I made all my monitors go crazy for about an hour. Once she was so concerned that she decided to leave I was fine. :)

I had serious problems with my food in the afternoon and pretty much puked up all my lunch all over myself... which is not an easy thing to do when you have a tube from your stomach going out your mouth! I just wanted a bath and I knew that this would work. Mommy gave me a nice long bath... check the photo of me impersonating a frog... cute huh?

Daddy's friend Dell came out to visit me for a while after he got off of work. He couldn't hold me though because he said he was possibly getting a cold. I think he just wanted to get his name on my blog!

Gramma and Grampa came out tonight too. They said that they had to deliver some money that Kenmore West Senior High School collected for me and my family, but I really think they just wanted to see me (and ruff up my brothers before they went to bed!)

Valentine Benefit For Jacob and Children's Hospital

We've just been contacted by another family who would like to host a benefit for Jacob and our family. At our request we would also like to have a portion of it go to the Children's Hospital Neonatal Intensive Care Unit becuase they did such a great job with Jacob and teaching us to care for Jacob. If you can be involved that would be great! Here's the info:

Valentine Chocolate Splurge to Benefit Jacob Fahmer
Saturday February 16, 2008 6:30 - 9 pm
Grace Baptist Church 2525 Eggert RoadTonawanda, NY 14150
A portion of the proceeds will benefit Children's Hospital Neonatal Intensive Care Unit

Hosted by friends of the Fahmer family

Anyone and everyone is welcome to attend, but if you know ahead of time that you and your family or friends are coming, please let us know. The contact information is below.
We will be serving chocolate as well as many other kinds of desserts, coffeee, teas, etc...If you would like to help in any way please contact Del and Chrissy Reid @ reid.chrissy@gmail.com

Wednesday, February 6, 2008

Day 24


Here's a picture of me and Ms. Sue from church. Her and her son A.J. came by to see me today! I really liked her bright shirt. She brought me some really kewl Buffalo Sabres booties and she also brought a Sabres stick and ball for both Jonathan and Joshua! How nice! So while I was trying to sleep, Joshua and Jonathan were having a hockey battle royale up and down the hallway. Maybe the sticks weren't such good presents after all! :)
I went to the doctor today and he said that I gained a few ounces. I'm now officialy 3 pounds 15 ounces. Man! I was hoping to break the 4 pound mark... guess I'll have to wait till next week! I'm having a little trouble digesting all the food that Mommy and Daddy put into my belly... they pull some out of my belly before each feeding... so my doctor said not to increase my food but gave us a new formula to mix in with Mommy's milk. I think it's like steroids... for babies. He also wants to talk to all my other doctors about the other night when I didn't feel good. He thinks it has something to do with my broken heart and wants to see what we can do to make sure that doesn't happen again.
After the doctors office we went to Gramma and Grampa's house and then we went to a church where they were having a pancake supper just for me! It was really cool! When you first walked in there were all these pictures of me! And at every seat at every table there were placemats filled with my pictures! I knew I was famous, but wow! I'm so famous that people want to look at me when they eat! I usually just look at the ceiling when I eat. Mommy kept me strapped in close to her belly all night (the outside of her belly this time... not the inside!) All kinds of people came to support me and my family. It was wonderful! Thank you to all of you who came out in that terrible weather so you could support us. Mommy and Daddy were overwhelmed at the show of love and support from all of you!
After that Gramma and Grampa helped get me home and my brothers in bed. Then I played some tricks on Mommy and Daddy with my monitors just to keep them on their toes. Mommy looked really tired so I thought maybe I should stop and let her get some sleep. Off to bed.... thanks for checking in on me again... hope your day was special and that you showed someone that you loved them!

Tuesday, February 5, 2008

Day 23


I had a good night sleep last night. I feel much better this morning. I decided to wake up to help Joshua with his school work. I kept trying to tell him the answers, but he's stubborn, and wouldn't listen to me. He did alright without my help though. I think I was kind of a distraction ... every couple of worksheets he had to come over and give me a kiss. Maybe he was just using me to get out of doing his work!

After nap, Ms. Chrissy came over with her two little daughters Delaney (who sang to me a couple of weeks ago... did you see the video?) and Chloe. Here's a shot of Chloe kissing me. She did this today about... oh I dunno...3,000 times. They love me.... but then again... who can resist me, honestly? :)

I got cards today from people in Hawaii. We don't even know them and they're writing me fan mail! I'm famous. Too bad I can't write.... cuz I could probably sell my autograph!

Mommy's cousins Derrick and Michelle came over with dinner tonight. They brought their son Jarrod. He's older than me but younger than Jonathan and he's cute. He really liked playing with all our toys and I really think that my big brothers wore him out!

I got sick of this tube in my mouth tonight so I decided to pull it out. Mom said it wasn't a good time to do it since I had to eat soon and she had to put a new one right back in. Doh! I'll get it when she's not looking next time! Mom also tried to get me to eat some milk through a funny nipple tonight. I liked blowing bubbles in it. It was fun... maybe we'll keep trying this ... Mom says I have to take it seriously so we can get rid of the tube ... that would rock! I guess I'll try harder.

Lastly, I've mastered the art of smiling.... but only when no one has a camera. This is funny for me and frustrating for Mommy and Daddy. Don't plan on seeing pictures of me smiling any time soon! :)

Site Changes

I'm currently in the process of reorganizing the site so that all of the newer video links along the sidebar will be at the top instead of the bottom. In the meantime, don't miss out on a bunch of new videos which have been added today somewhere throughout the right sidebar!

Monday, February 4, 2008

What A Day! Day 22


I can barely keep my eyes open to write all this down! Today started off with Ms. Dolly coming over with her son Joshua and daughter Aubrie. I've never heard such crazy racket come from my brothers before. Those four kids ran all over the house playing hide n seek and making more noises than the loudmouth girl in the end crib back in the Nicu!

Then I decided to not let Daddy get a nap ... so I stayed wide awake the whole time Mommy was out of the house. Daddy showed me his room and the neat fan on the ceiling! I think he thought that it would put me to sleep. Silly Daddy!

I did a miniphotoshoot with Joshua for Mommy when she came home and then Mommy and Daddy's friends Chris and Amy drove all the way from Rochester to bring us dinner! AND... they brought their 3 sons! You know that part about crazy racket earlier? Well you should have seen the 5 boys running around the house with cars and trucks and swords and who knows what else! Gramma and Grampa showed up to sing Happy Birthday to me again (check out the video on the top of the sidebar!) Today is officially 3 weeks!

I didn't feel too well after Chris and Amy and the boys left... I think I scared everybody when I held my breath for too long. Well, one good thing about it, Mommy hasn't taken her eyes off of me since. In fact, I'm sleeping in her arms right now. Good night!

Scary


Jacob gave us quite the scare tonight. After we had finished celebrating his 3rd week of life with us he turned very discolored and appeared to stop breathing. Karen quickly went to work trying to stimulate him to start breathing again and he did and after a couple of minutes he pinked back up and seemed to act fine. We're going to keep a close eye on him tonight... this episode makes this email that I was finishing up all the more relevant....

Gramma took Joshua and Jonathan to Chuck E Cheese this past week while Jacob went to the cardiologist. Afterwards she remarked that she couldn’t believe how fast they’ve grown. They no longer want to stay in the “kiddie section” and it seemed like only yesterday that that was all they wanted to do. Now they’re into skeet ball and video games and collecting tickets for toys! How true that is. Time flies. It seems like only yesterday…
James 4:14 says, “What is your life? You are a mist that appears for a little while and then vanishes away.” Someone sent us a card this week that had this message penned inside it: “God does not measure the significance of someone’s life in years. There are some people who live 100 years, and yet they won’t touch the number of hearts and lives as your baby Jacob has already.”
Daily I’m overwhelmed with the people who email me, call me, talk to me, or send cards telling us of how God is using Jacob in their lives and in the lives of those around them. Jacob has brought many people closer to God. Jacob has brought many people closer together with family and friends. My prayer is that each of our “long” lives could be as effective for God’s kingdom!
Through the past couple of weeks I’ve often thought of John 9, one of my favorite stories in the Bible. It starts off like this: “As Jesus went along, he saw a man blind from birth. His disciples asked him, ‘Rabbi, who sinned, this man or his parents, that he was born blind?’ ‘Neither this man nor his parents sinned,’ said Jesus, ‘but this happened so that the work of God might be displayed in his life.’” I firmly believe that Jacob was allowed into our lives so that the work of God might be displayed in his life. But not his life alone… but in all of ours. I hope we’re all changed as a result of this little peanut!
Later in that story, the man who was born blind and given back his sight is given quite a hard time by the religious leaders of his day and even his family. Eventually he’s kicked out of town simply because he was healed by Jesus. One of my favorite verses in all of the Bible is next: “Jesus heard that they had thrown him out, and when he found him, he said, ‘Do you believe in the Son of Man?’ ‘Who is he, sir?’ the man asked. ‘Tell me so that I may believe in him.’ Jesus said, ‘You have now seen him; in fact, he is the one speaking with you.’ Then the man said, ‘Lord, I believe,’ and he worshiped him. Jesus said, ‘For judgment I have come into this world, so that the blind will see and those who see will become blind.’” (vs. 35-39). Did you catch that? It said Jesus heard that he had been kicked out “AND WHEN HE FOUND HIM…” That’s the greatest part of the whole story. Jesus went and sought out the blind man who could now see! He was looking for him and He found him.
One of these days Jesus will come looking for my son Jacob. Honestly, I don’t know how the work of God will be manifested in his life. Perhaps God will give grace to him and allow him to live a long life. I pray every day for healing for Jacob. David pleaded with God for the life of his child even after God Himself had pronounced that his son would die (2 Samuel 12). God hasn’t told me that Jacob is terminal, only doctors have! And while I know that God is able to, I also realize that He may choose not to. It’s kind of like Shadach, Meshach and Abednego who told the king, “If we are thrown into the blazing furnace, the God we serve is able to save us from it, and he will rescue us from your hand, O king. But even if he does not, we want you to know, O king, that we will not serve your gods or worship the image of gold you have set up." What an awesome understanding of God’s limitless power and absolute sovereignty in our daily lives! Perhaps the work of God in Jacob’s life will be mercy and He will spare him the pain and agony of long life. I don’t know. What I do know is that Jesus will some day come looking for Jacob, find him and embrace him.
Perhaps the work of God that is Jacob’s life is that you may draw closer to Christ through our trial. This may seem awkward to us, but perhaps Jesus is coming to find you…perhaps Jacob was put here on this earth so that you might know the Creator of this earth more intimately. While we have thoroughly enjoyed every second with our gift from God there is nothing that would make us feel better than to hear that he has brought you closer to the “Gift of God, Christ Jesus our Lord” (Romans 6:23).
The truth is time flies, our lives are like a vapor. We get caught up in the daily grind of regular routine and life passes us by. Before we know it decades have flown by or life has been snatched away from us. Take time to live and savor life and take no minute for granted. “I tell you, now is the time of God's favor, now is the day of salvation.” (2 Corinthians 6:2)

The Fahmers

I Am The Child (poem someone sent me)

I Am The Child
I am the child who cannot talk. You often pity me, I see it in your eyes. You wonder how much I am aware of. I see that as well. I am aware of much ... whether you are happy or sad or fearful, patient or impatient, full of love and desire, or if you are just doing your duty by me. I marvel at your frustration, knowing mine to be far greater, for I cannot express myself or my needs as you do. You cannot conceive my isolation, so complete it is at times. I do not gift you with clever conversation, cute remarks to be laughed over and repeated. I do not give you answers to your everyday questions, responses over my well being, sharing my needs, or comments about the world about me. I do not give you rewards as defined by the world's standards.. great strides in development that you can credit yourself; I do not give you understanding as you know it. What I give you is so much more valuable... I give you instead opportunities. Opportunities to discover the depth of your character, not mine; the depth of your love, your commitment, your patience, your abilities; the opportunity to explore your spirit more deeply than you imagined possible. I drive you further than you would ever go on your own, working harder, seeking answers to your many questions with no answers. I am the child who cannot talk.
I am the child who cannot walk. The world seems to pass me by. You see the longing in my eyes to get out of this chair, to run and play like other children. There is much you take for granted. I want the toys on the shelf, I need to go to the bathroom, oh I've dropped my fork again. I am dependant on you in these ways. My gift to you is to make you more aware of your great fortune, your healthy back and legs, your ability to do for yourself. Sometimes people appear not to notice me; I always notice them. I feel not so much envy as desire, desire to stand upright, to put one foot in front of the other, to be independent. I give you awareness. I am the child who cannot walk.
I am the child who is mentally impaired. I don't learn easily, if you judge me by the world's measuring stick, what I do know is infinite joy in simple things. I am not burdened as you are with the strifes and conflicts of a more complicated life. My gift to you is to grant you the freedom to enjoy things as a child, to teach you how much your arms around me mean, to give you love. I give you the gift of simplicity. I am the child who is mentally impaired.
I am the disabled child. I am your teacher. If you allow me, I will teach you what is really important in life. I will give you and teach you unconditional love. I gift you with my innocent trust, my dependency upon you. I teach you about how precious this life is and about not taking things for granted. I teach you about forgetting your own needs and desires and dreams. I teach you giving. Most of all I teach you hope and faith. I am the disabled child.

Baby Jacob Pancake Dinner


We've just been informed by an old friend that our story was shared with the youth program at Kenmore United Methodist Church and in response they decided they would like to donate the proceeds of their Pancake Supper this Wednesday to our family. Anyone who can participate please do so.
Date/Time: Wednesday, February 6th from 5:30-6:30
Location: Kenmore United Methodist Church located at 32 Landers Road Kenmore NY 14217. Price: Donations Only.
Pancakes, sausage, drinks and desserts will be served.

Thank You!

Day 21



Today Mr. Doug and Mrs. Judy drove all the way in from Delaware to see me! They came in early and spent the whole day with me and Mommy, Daddy and my brothers! It was so much fun... cuz I slept through all of it! Mrs. Judy brought me some new clothes and some fun things for my brothers to play with. Our neighbor Ms. Jan came over and brought me a fruit basket. Then I spent the night playing with clay with Mommy, Joshua and Jonathan. Of course I woke up when it was time for everybody else to go to bed. I did manage to catch the last two minutes of the Superbowl with Mommy and she thinks I'm a Patriots fan because I fussed everytime we talk about the game. She should know better.... I'm a die hard Bills fan!

Saturday, February 2, 2008

Day 20




Happy Groundhog's Day. Today aunt Josie came to visit me again and this time she not only brought uncle Tony and Matthew with her but she even let them hold me! I thought for sure she was going to hog me all to herself again. Joshua and Jonathan were happy because aunt Josie broght them "emmies." Then Mommy's aunt Arlene, uncle Bob, and cousin Lisa came to visit. Mommy and Daddy were happy because they brought lots of yummy food! They also brought me and my brothers some fun candy and toys!
Me and Mommy wrapped up in our prayer shawl and fell asleep on the couch for a while while Daddy and my brothers played Lego Star Wars. Gramma came over and woke us up so that she could celebrate her birthday with us! I'm beginning to think that all we do is have birthday parties around here! Aunt Nancy and uncle Kevin came by to celebrate Gramma's birthday and even Grampa eventually showed up. We got to sing happy birthday again and eat more yummies. Everybody decided to pile into the bathroom and watch me take a bath since I had a little over active digestion problem! How embarassing! :)
I'm pooped out ( or out of poop I guess ) so I think I'll just curl up on my Mommy again for the rest of the night.

Friday, February 1, 2008

Day 19


Last night I decided it was time to start acting like a normal little baby. Mommy and Daddy always say what a good baby I am and how well I sleep.... so instead... I decided to be FUSSY! I spent about 4 hours alternating between wanting my pacifier and not wanting it, between dozing and crying and then finally drifted off into sleep.
This morning we went to see the cardiologist. I made his day. He likes to hold me and calls me his "little boyfriend." He listened to my heart and said that everything is about the same as it has been. He wants to see me again in a couple of weeks to make sure that I'm breathing ok. He hugged Mommy AND Daddy.
I made my second visit to Gramma and Grampa's house today and Gramma spent a lot of time holding me up on her shoulder. I liked that!
Mommy and Daddy's friends couldn't make it to visit tonight since the weather was lousy outside so we stayed inside and spent a lot of time as a family... I watched Joshua and Jonathan play with Moon Sand for the first time... what a mess!
I spent the rest of the night hanging out on Mommy's chest - I hope they don't mind if I'm awake at 2 A.M. again tonight!

Bedtime Songs


Here's a bedtime song that Karen and I have sung to the boys since they were little... seems even more appropriate for Jacob...
"There is Only One" - Twila Paris
There is only one person like you in all of this great big world
And you are just to God made you to be whether a boy or a girl
Whether you are black or white or some beautiful color in between
No matter your shape or size you're as perfect as anything I've ever seen
Your mom and your dad they are so glad you are a part of their family
There is only One who loves you more
He is your Father in Heaven
He is the Lord

Listen to it here: http://play.rhapsody.com/twilaparis2/bedtimeprayerslullabiespeacefulworship/thereisonlyone

Day 18


This morning Joshua woke up and came out and spent a lot of time with me. He taught me to hold my paci (sometimes him and Dad call it a Binky since Joshua can't remember "pacifier"). I sure am growing attached to that thing so it will come in handy being able to hold it myself! Mommy says its good that I like it because it might help me to learn to breathe and take a bottle at the same time. Anything to get rid of this tube down my throat!
Today was supposed to be "family day" where Mom and Dad had planned on not letting any visitors over to see me. I'll show them what I think of that idea! Just before Mommy and Daddy were about to take me to the YMCA to watch my brothers gym and swim I decided to show Mommy my new hernia while she was changing my diaper! They said they wanted me to grow so I made a walnut sized hernia in my groin! It totally freaked Mommy out! She almost gagged when she touched it and it disappeared and then came back again! So I got the nurse to come out and visit me while the other boys went to the Y.
The whole family participated in my first big boy bath in the tub. Jonathan kept putting water in my eyes but otherwise it was great! Mrs. Dina and Stephanie brought over dinner for us but couldn't stay long because she had a baby boy crying in the van! Then Pastor Bruce and Terry came over and brought pizza for the family. Pastor Bruce likes to hold me and pray a lot. I slept through most of their visit so I guess that means its ok that they came over during "family day!"